It was brought to my attention this evening that most people think I’m a hypochondriac because I have so many diseases! What?? I then had to explain there is a huge, but vital, difference in the two. What is it? Diagnoses! Yes, diagnostics help doctors to make a proper diagnosis. If you THINK you have a disease that’s a hypochondriac. If you HAVE the disease you are NOT a hypochondriac!
I have battled this stigma since I was young. I knew I was sick, I had diagnoses, I did not feel I had to tell everyone and upset them. Plus there are times when it’s just not right to say hey I need to upset you….I have cancer. I was diagnosed with Thalassemia when I was young, momma & my deceased brother have it too. I’ve gone through cancers. I’m not special–well, I was to Daddy, but you get it! 👑😍 I was told many times by different specialists that my genes, environment, eating probably effected most of the diseases I live with. My cancers were all endocrine system related. Many other diseases were one leading to another. Imagine a persons body leading from mouth to bottom. Getting a disease in your mouth does not mean your next station along the route will get diseased, but it often can. Mine did. My system seemed to create a disease layer system where one breakdown led to another
You see I have a lot of diseases/illnesses. Now don’t tell my mind as my Doc & me discuss often, I could have 20 more diseases & it won’t matter. Most are under treatment, & I look at it as positive as I can–I have told myself over the decades, add another disease it doesn’t matter. And it doesn’t. It’s just another treatment. My mind is thinking it’s one disease.
What YOU THINK, you BELIEVE!! And you will. I began getting severe spasms, muscle & skeletal pain in my teens, 15. I was active, a jock. At first we treated it slowly thinking it was muscle strains, sprains, etc. Once it was found to be arthritis it created a snowball effect.
If you know anyone like myself with Auto Immune Diseases then you probably know they have a list of other diseases. It’s common for AI patients to have their body turn on them in numerous areas.
I’m never woe is me! That’s not me! If you have been around me much over the last two decades you know me-I’m upbeat not down. I’m positive. I move forward. I focus on what I can do, not what I cannot do. Yes occasionally I say oh I want to do…..but I don’t wallow, I just find another thing to do instead. If I cannot paddle a kayak anymore that’s okay, I can sit in the kayak & have someone paddle me instead. 😆
I could list list every last surgery, disease, etc I have. What I will do is mention some diseases I have so you can see how one disease might correlate with others.
Osteopenia, Multiple Sclerosis, Rheumatoid arthritis, Fibromyalgia, Mild Scoliosis, Spinal Stenosis, Crohns Disease, IBS, Thyroid Eye Disease, Graves Disease, MVP, RLS, PLMD, Lupus (dermal), Thalassemia, Plantars Faciitis, OA, TMJ, Migraines, Degenerative Bone Disease, Degenerative Joint Disease, Degenerative Disc Disease, D’Quervains, Bursitis, GERD, FBD.
That is enough off the top of my head. Plus some things should be private right? 😜😬
I began researching diseases about 15 years ago just as was I becaming disabled. I had been bed bound for many months at a time, wheelchair bound, home bound. I worked as a Medical Technologist (Lab) for 15 years followed by additional University degrees & becoming a Clinical Therapist. When my life changed and I realized I could no longer work full time & finish my last year of my Doctorate I still needed to work my brain. I knew I could help others. It is then that I became a Medical Advocate (over 6+ years ago) to help battle stigmas that people like me have to live with. I needed to help other Chronic Pain patients, & medical patients, ones that still battle the public, the system, their own bodies. I hope to help the rest of my life. I did not ask for the challenges, the tests that followed, nor the diagnoses. What I can do about it is watch what I think so it comes through my body & my life. I will continue to fight for myself and millions like me who continue to be stigmatized by medications they take, diseases they have, doctors who may not be educated about their diseases. I will remain positive, hopeful, & use my faith as I refuse to give up! So join me, if you go through the same things I have let me know. I know what you go through. I am here to fight for us! 😊❤️ If you find a Doctor that doesn’t know your disease it’s okay. Find one who does. Be positive! Stand strong! I’m right there with you .😊❤️